The Huge Caveat About it is...
An eye opener, pun intended!
- Is that with #Ocular Sarcoidosis--
One might think, Oh, I'm good... All I need to do is take my medication! But, actually with sarcoidosis...
For some people that have sarcoidosis-
Even with taking rheumatology medications., auto-immune suppressants or corticosteroids, prednisone medications etc., that treat Sarcoidosis/Sarcoid if you will... It's still possible, that the worst can still happen to the... body part/parts (organs) that sarcoidosis affects!
Blog Letters xoxoLisa
- Lastly, is your doctor a mind reader!
Probably not...
Your healthcare provider will ask...
"What are you here for today"
aka., your chief complaint...
A huge part of a diagnosis is based on symptoms!
It's important to find out the reason for symptoms ie., an treat, any coexistencg conditions that are additional to sarcoidosis symptoms; this is partly to also rule out if sarcoidosis is mimicking another disorder or condition & vice-versa.
⤵️
The
Cause
Of
Sarcoidosis
Is not known!
For This reason--
Blance Perspectives With Insights Managing
&
Staying Healthy Living With Sarcoidosis ...
Is highlighted!
With firsthand insights about sarcoidosis+
Informational
#Facts You Need!
To Resources, To 3rd Party
Educational Links/Websites
&
Ton's of Informational 3rd party Webinars--
Also, Sarcoidosis
Related Educational
&
Informational Resources
Sarcoidosis News...+more
About-Sarcoidosis You-are-not-alone!
Again, #Sarcoidosis, is a whole body disease & requires whole body treatment!
That said...
You Probably
Should...
Run!
A Lisa-- #Experience
Wellness and preventative care with respect to...
Sarcoidosis Symptoms & Symptom Management & Sarcoidosis Symptom Progression & Sarcoidosis stages...
#Due Diligence
- If you run into a healthcare provider (pun intended) that tells you...
You can only talk about " 1 " symptom at a time during your visit...
(To my surprise and unfortunately, I have experienced this experience in a clinic setting as well in seeing a specialist) #Insights
Even worse, to reschedule an literally pick which symptom you want to be seen for that day!
It's crucial in finding the right healthcare provider as--
#Sarcoidosis is a whole body disorder...
Stuff, like this is why some people with Sarcoidosis has or have been to a multitude of healthcare providers long before a diagnosis of sarcoidosis an thereafter.
It's a pet peeve, of mine --
Perspectively, when I'm asked so - Why did you change providers... #IJS
When I say Sarcoidosis is a journey it's a huge under statement! Because, some people that have sarcoidosis do not look sick an in some cases this may hinder or delay care.
Informational
Awareness
&
Dicussions
About Sarcoidosis
- Special Thanks!
To my daughter Jaz, MBA
Valiantly...
Aways there in my sarcoidosis journey.
xoxoLisa ♡Mom
As for me...
My roadmap an my journey of sarcoidosis is my own! An again its been many years since I first heard the word Sarcoidosis! The alike too the many years figuring out how to live ergo., managing...
- Sarcoidosis Wellness & A LifeStyle Balance...
My posture is sarcoidosis experience... ergo., I have receipts if you will-- an all the Yin and Yang that came with sarcoidosis; yesterday, today an maintaining life living with sarcoid, sarcoidosis moving forward.
Blog Letters xoxoLisa
Save The Date: April 23rd
-Educate Thyself Valiantly About-Sarcoidosis...
Navigating ✔️Resources ✔️
From someone who has had sarcoidosis for more then 10+years...
Me, You & Sarcoidosis
-xoxoLisa
Annually April Is Sarcoidosis Awareness Month
When You're@Home Resources
- She made it her mission sarcoidosis cognizance...
In my search for informational purposes about sarcoidosis✔️ pointing out resources✔️
Information Awareness
That I've found to be helpful
Hence--
ABOUT-SARCOIDOSIS.COM
SARCOIDOSIS- Hyperlink References, 3rd-party Links & Resources/websites/sites; 3rd-party References Listed here at--
Cognizance, Insights, perspective and opinion as a patient-- living with sarcoidosis...
- XoxoLisa