#JS repost—

🔗Link💕I found to be very helpful 💕

 

https://youtu.be/LEvhkNLrawU?is=p5gqFOH3m59xGtVy
Universally, we all have choices like in what channel you watch your news etc., what mall, or stores to go to or when dining out some like, prefer Capital Grille, or Delmonico's or Fleming’s Prime Steakhouse or some like LongHorn Steakhouse or Red Lobster or The Cheese Cake Factory etc., & The -Alike, when choosing healthcare #JS

Sarcoidosis is just lot -#exhausting- #overwhelming sarcoidosis is a whole body disorder.

 

I disagrees —-
And Alike… My question off the rip -I ask myself., is gonna be when I see any doctor, for any reason because of sarcoidosis is -


How’s your doctoring💭


Again, there’s no cure for sarcoidosis and yet, I still need A-game about sarcoidosis. #JS

Trust me when I say -I want you to be good at your job… Alike- I don’t won’t the inconvenience, with no drama quietly change doctors and cause I don’t want to have to switch up doctor #JS I’m overwhelmed- an Im not talking about the providers who straight out tells you - I don’t handle sarcoidosis and I respect that absolutely.

 

Sidebar -Some who do not specifically, specialize in sarcoidosis and w/ocular sarcoidosis may ask..


As I’ve been diagnosed, re-diagnosed an undiagnosed and diagnosed again by everyone except my ophthalmologists; who is a medical eye doctor and also the medical doctor that officially, diagnosed me with sarcoidosis who is chief of Rheumatology, MD

An
—If this is your first question thats when I’m bothered but, not —-concerned… Because, sarcoidosis has been around decades still not fully understood, yet and still no cure for sarcoidosis so I do understand…

#Random
when actually…
No one should ask if you will or in my mind it shouldn’t be a verbal ? to me #JS
—if youve had an Eye Biopsy— to answer the question of … is that how you found out you had sarcoidosis—

 

Wait, I’m confused with my thinking…. Face an my head turned to the side -
Medical HX, -History is important but, I do understand, I get it, #Patient Overload I understand also human factors play a role also -who likes to read or who has the time…. Blah blah blah…

 

Why—
—off the rip, it’s because an eye biopsy results in vision loss. #JS

I’ve learned to be understanding after a decade of living with sarcoidosis💕

 

 

#The patient prospective #POV
Read more+
@www.about-sarcoidosis.com

 

 

Misinterpreting—

 

 

-The Face Of Sarcoidosis...


Sometimes causing-
▪️▪️▪️ Some people to be distracted by the Face Of Sarcoidosis causing senearios of — Delay and Help in reverse…

🔗link sarcoidosis webinar
https://youtu.be/zrYLShcnTzQ?is=6jWfmqtmXz-qish0

Lisa's, Perspectives- and Opinions & Insights -
#POV
#Weblog
#anyways ✌🏽& 🤎

 

▪️▪️▪️
POV: That by the Absence Of Sarcoidosis
Awareness Is-
The Absence Of Understanding Sarcoidosis.

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