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POV: Overview of Sarcoid—
Perspective…
xoxoLisa💕
Sarcoidosis usually starts in Lungs or Lymph nodes but not always.
They’re’s many variations of how sarcoidosis can manifest w/a variety of symptoms!
If Doctors, Healthcare Providers are having trouble figuring out whats wrong; it’s worth the conversation "could it be sarcoidosis"....
#JS
Here’s what I know—
I too have sarcoidosis …
For me…
The onset of sarcoidosis, was acute Ocular Sarcoidosis then Chronic Sarcoidosis; Acutely, which is how I was initially diagnosed with sarcoidosis in my eye 1st and skin.
Forms of sarcoidosis can be:
Subacute • Acute • or Chronic
or a combination. Regardless of the manifestation of sarcoidosis #Fatique is universally severe!
I have Subacute/Chronic #Systemic Sarcoidosis💭with ocular involvement and as a potential major complication due to sarcoidosis! That said, additionally, sarcoidosis can still affect other body parts or organs!
It’s something like 2yrs+of chronic sarcoidosis that it’s then #systemic sarcoidosis blah, blah, blah.
By Subacute I mean:
Heerfordt- Waldenström, Syndrome💭
- Its a rare subacute variant …
of “sarcoidosis” the symptoms
— can be;
Enlargement of the parotid gland (my Parotid Gland - swells up with pain unpredictably… My swollen parotid gland due to sarcoidosis; a biopsy ruled that my parotid gland was benign hence, I did not get it removed! So, it’s just because I have
Sarcoidosis!
Salivary Glands (my Salivary Glands (under my chin) have been swollen for the past 10yrs) #JS when I am having a sarcoidosis flare they are slightly bigger with pain. # Prednisone, is then my best friend out side of a low dose daily maintenance dose of prednisone.
Additionally, the (Possibility of)., Facial Nerve Paralysis because of sarcoidosis —
-It’s also a possible side effect … possibility of the worst that can happen during surgery when having the #PartoidGland removed, because of where the parotid gland is located blah, blah, blah!
In my eye- Anterior uveitis (Flares) and flares that change from severe eye• symptoms • to just additional slow vision loss with hardly to no eye symptoms!
It’s been more then 10+ years, since I first heard the word sarcoidosis💭
What is my experience—
Sarcoidosis is the experience 💭
Sarcoidosis starts somewhere and that somewhere was my Eye!
Long story short—
#Systemic is sarcoidosis started in my eye but, also affects other parts of my body.
A sarcoidosis flare up for me
usually includes…
- Joint Pain and Swelling: Pain, stiffness, and swelling in one or more of my joints. #Just not feeling well💭#sarcoidosisawareness #flareup
I have #Ocular Sarcoidosis left untreated #ocular sarcoidosis will absolutely, for most cause severe vision loss an or blindness. The hope on the progression of vision loss is to slow down progression (via medication management) to hopefully, a more expected old age, a later age of 75+ etc, or 80+yrs of age if you will., Blah, Blah, Blah,
with no guarantees.
I take my vision seriously! #Due Diligence💭 My medication management- methotrexate, and hydroxychloroquine, and Dexamethasone a corticosteroid
Blah, Blah, Blah🙃
Hence,
www.about-sarcoidosis #Weblog About-Sarcoidosis
Most people know that the comedian, actor Bernie Mac, had sarcoidosis! Sarcoidosis affects each person differently!
Check out my #weblog for my Perspective-Insights About-Sarcoidosis
My #Weblog
- Is not for me…
but, for you💭
There is so much behind the words I have sarcoidosis! For that reason I limit my words to I have sarcoidosis followed by I’m ok as I give my website address: www.about-sarcoidosis.com as not to go into detail About-sarcoidosis when asked What is Sarcoidosis! #Repeatly
✌️🖤MzLadyAkridge🖤👊
⬛️Follow me⬇️Social⬛️Media Share💭 #A ♊️🙌🏽#POV
Perspective-Insights About-Sarcoidosis